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Centre for Health Economics and Policy Analysis

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Improving data sharing for global health research subject of CHEPA seminar

02 May 2012

Principles developed to promote and guide data sharing across the Global Health Program of the Bill & Melinda Gates Foundation will be the subject of the CHEPA monthly seminar on May 16, presented by Claudia Emerson, senior scientist at the Sandra Rotman Centre, University Health Network and University of Toronto, and adjunct assistant professor in philosophy at McMaster University.

Recently, there has been a ‘scaling up’ in efforts and commitment to promote data sharing in public health as funding agencies strive to maximize the value derived from research outputs. Despite these efforts, broad data sharing remains a challenge in many research domains, owing to technical barriers, claims of data ownership, and privacy concerns, amongst other reasons. 

Global health research faces additional challenges related to the inequity between developed and developing countries, where the asymmetry between data producers and data analyzers, lack of infrastructure and lack of local capacity, creates conditions that can lead to exploitation of researchers from developing countries 
  
In the presentation entitled From Principles to Policy: Data Sharing in Global Health, Emerson will examine some of these challenges and discuss the development of the Global Health Data Access Principles (http://www.gatesfoundation.org/global-health/Documents/data-access-principles.pdf) which pay special attention to enabling equitable data access and capacity strengthening in developing countries.

The seminar will take place in CRL-B119 from 12:30 to 1:30 p.m. All are welcome to attend. The seminar will be available remotely for those who are unable to attend. Click here for instructions on how to listen to the presentation through Elluminate.

Emerson is a senior member of the Ethical, Social, and Cultural Program for global health at the Sandra Rotman Centre. The program is funded by the Bill & Melinda Gates Foundation. Her research is focused on developing governance models to facilitate data sharing in global health, and ethics and policy issues related to the eradication of infectious disease.

Emerson has a master’s degree and a PhD in philosophy specializing in ethics from McMaster University, and a B.Sc. in biochemistry from the University of Guelph.

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